The Misunderstood Child
October 2, 2018
you frequently running your child to the dermatologist to check multiple moles that have developed all over his/her body? Why in the world does your child have so many unfounded fears? Why does your kid frequently have stomach problems, especially under mentally stressful conditions? Why do you have to pull over to the side of the road because your kid is car sick all the time? Why does your child have such difficulty determining right from left?
If you have a child whose bad behavior and poor school performance is simply beyond explanation by pediatricians, mental health counselors and other child development specialists, your child may have a triad of nutritional deficiencies that have led to epigenetically imprinted behaviors, learning patterns, lack of stamina, lassitude, heightened sensitivities to sound, weak immunity and physically evident skin problems (especially moles) that heretofore were believed to be separate issues rather than part of a pattern of problems.
Your child may have a multi-faceted condition known as pyroluria.
You never heard of pyroluria and you’ve been battling to understand your child’s behavior all this time?
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Pyroluria defies simple definition. It is frankly dismissed by modern medicine. Modern medicine’s overspecialization is one reason why pyroluria is not suspected because it affects so many aspects of a child’s life, physically and mentally. Different organs and tissues are involved. You child may be carted around from psychologist to pediatrician to dermatologist and pediatric gastroenterologist. And given that pyroluria emanates from a complicated nutritional deficiency, something modern medicine not only looks down its nose at but has little training in, it is not a surprise to find this condition is entirely dismissed.
For the most part, in the mind of doctors every malady is a drug deficiency until proven otherwise. Disturbed and inattentive kids are prescribed stimulants like Ritalin that improve their grades and discipline but keep them up all night. Ritalin treats anxious mothers, not kids.
Diagnosis by symptomology
There is no convincing blood test to confirm pyroluria so it has to be diagnosed by signs and symptoms.
There are a number of maladies that are diagnosed solely by symptomology. Fibromyalgia is probably one of the most prominent ones. Fibro was often thought to be some sort of contagious psychosomatic condition. But it certainly can’t be said that fibromyalgia is something that thousands of patients simultaneously dreamt up in their heads. In fact, deficiencies of vitamin B1 and vitamin D both appear to produce the very same symptoms of unexplained pain characterized in fibromyalgia.
The widespread consumption of sugary foods, alcohol, carbohydrates and tea and coffee in modern diets explains fibro’s connection with vitamin B1 as these dietary components block B1 absorption. The phobia over sun-induced skin cancer (deadly melanoma) and over use of sunscreens combined with the widespread participation in indoor computer games chosen over playing outdoors has spawned endemic vitamin D deficiency among children in their developing years. An increase in myopia (nearsightedness) is only one of many maladies spawned by living indoors during childhood.
Pyroluria was initially defined as abnormally high blood levels of kryptopyrrole. But, like pernicious anemia (a vitamin B12 deficiency), common symptoms of pyroluria occur with normal kryptopyrrole levels.
Symptoms of pernicious anemia (sore tongue, burning feet, fatigue, short-term memory problems, backache, unexplained cough) occur even when blood levels of vitamin B12 are within the normal (reference) range and often resolve with B12 supplementation.
A Yale professor says studies in the 1970s discredited the idea of pyroluria and it was discarded as a failed hypothesis.
No kryptoyrole in urine was found among schizophrenics. But that doesn’t necessarily rule out this condition altogether. Doctors were studying schizophrenia, not pyroluria.
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Recently pyroluria has been more precisely described as overproduction of a byproduct of hemoglobin synthesis called hydroxyhemopyrrolin-2-one (HPL).
Pyroluria is purportedly caused by problems in the synthesis of hemoglobin – the protein that binds iron in red blood cells and carries oxygen. This would explain why pyrolurics are easily fatigued.
It ought to be obvious that iron-rich foods (red meat) need to be provided to children who exhibit signs and symptoms of pyroluria. But iron is not on anyone’s list of nutrients suggested for pyroluric children. And red meat is also a good source of highly absorbable zinc, believed to be the major missing nutrient in pyroluria.
Historically Dr. Carl Pfeiffer, founder of “orthomolecular psychiatry” in the late 1960’s, was among the first clinicians to describe pyroluria. Pfeiffer treated mood disorders with high doses of megavitamins. This led to a triad of nutrients that are believed to remedy pyroluria — zinc, vitamin B6 and omega-6 GLA fatty acids derived from borage, evening primrose or black currant seed oils.
Pyroluria: a confusion of terms
Pyroluria has been called the most common unknown disorder. It also goes by other names (Mauve factor, pyrrole disorder, pyroluria, pyrolleuria, malvaria) which makes an investigation into its origins somewhat confusing.
A mauve (slightly purple) color in urine was detected in urine in 1969 and reported in 1969 to be associated with various behaviors and other physical conditions.
Mensah Medical, that has experience in detecting pyroluria among thousands of cases, says it affects ~10% of the population. How could modern medicine miss this?
A zinc blood test may falsely indicate zinc sufficiency when it only reveals recent dietary intake. Furthermore, what was happening to a child during their prenatal and early postnatal development is what may have predicated their behavior and health status years later in life.
Zinc deficiency impairs learning and produces memory deficits in childhood that persist into adulthood. The epigenetic past (zinc deficiency) may imprint a genetic propensity towards pyroluria in the present. Current blood levels may be of little or no importance.
A search of the many volumes of published medical literature at the National Library of Medicine only produce scant reference to this condition.
The symptoms of pyroluria are broad and affect many systems and organs in the body. Sufferers of pyroluria are likely to chase down one symptom at a time in a hit and miss fashion.
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Common symptoms
Here is a compilation of symptoms commonly associated with pyroluria.
- Tingling in arms and legs
- Significant growth after age 16
- Reading difficulties (dyslexia)
- Preference for spicy foods
- Poor morning appetite, skips breakfast
- Motion sickness
- Hypersensitivity to loud noises
- Fatigue
- Loner; doesn’t need a social group
- Tendency towards anemia
- Delayed puberty
- Constipation
- Cold hands and feet
- Sweaty feet
- White spots on fingernails
- Abnormal body fat distribution
- Abdominal pain
- Stretch marks on skin
- Skin problems (folliculitis, impetigo, athlete’s foot, moles)
- Heightened fears: spiders, needles (medical procedures)
- Oppositional behavior
- Poor handwriting (low dopamine)
- Skin problems (moles, warts, folliculitis, Athlete’s foot)
- Salt craver (food has no taste; needs salt (due to lack of zinc)
- Stress induced nausea, stomach issues
- Problems with executive functioning (awareness of time, organizational skills)
- Oversleeping
- Easily fatigued
- Not eager to participate in team sports
- Pudgy (doughboy) body shape
- Late puberty
- White dots in the nail bed or ridges on nails
- Sleep cycle (late to go to sleep; late to rise in AM)
- Poor short-term memory (can’t do math facts)
- Stretch marks on skin
- Skips breakfast
- Weak immunity (vaccination maybe be problematic)
- Motion sickness
- Overwhelmed in stressful conditions
- Significant growth after age 16
- Chronic constipation
- Stitch in side when running (spleen)
- Digestive issues
- Needs vitamin/mineral therapy, not talk therapy
- Poor handwriting (lack of dopamine?)
- Head rocking in bed
It might surprise you when I say that my now 14-year old son exhibits or has exhibited ALL of the above signs and symptoms at one time or another. DON’T TELL ME THERE IS NO SUCH THING AS PYROLURIA!
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The misunderstood child
My son was kicked out of one school because he appeared to intentionally shirk his school work. I remember seeing him sitting at his school desk with his head leaning on his bent arm like he was tired all the time. His mind couldn’t keep up with lessons delivered on the chalkboard.
This has led his parents and teachers to mistakenly believe our son doesn’t want to follow parental orders and needs stricter discipline; that because of his fatigue and cold feet and tingling extremities, he might have diabetes and needs a blood sugar test (good luck trying to get that blood test — he strongly fears needles!), and that he needs to go to a talk therapist. None of the above have been beneficial. His problems are molecular, not mental.
I haven’t met a talk therapist who would resign from their consultations with my child simply over their need to generate income whether my child benefits from talk therapy or not.
You might find this is your perplexing experience with your own child. I find exasperated mothers don’t do well with pyroluric children if for no other reason than self-blame or attempts to avoid blame for the behavior of their child. Fathers need to step in and be more involved.
The nutritional 180° turnaround
The good news is that my son has experienced remarkable improvement taking a regimen of daily vitamins and minerals. His skin problems have subsided. No new moles. His doughboy body shape is vanished as he grew 3 inches without gaining a pound of body weight. He is starting to fall to sleep earlier and wake up earlier. Stretch marks have vanished. He is still fatigued easily. With help he is overcoming his fears. But his child counselors have been no help whatsoever in any of this improvement.
Compensatory abilities
Children with these handicaps often exhibit compensatory abilities. My son astonishes adults with his broad vocabulary, acute logic, unusual creativity (he once built an 9-foot exact replica of the Golden Gate Bridge with building blocks from memory), and is so inquisitive that he doesn’t need to be prompted to learn and exhibits such unusual knowledge on a broad number of subjects that adults have given him the middle name “encyclopedia.”
Everyone says it might be autism
If you have a pyroluric/dyslexic child you will hear this over and over — maybe your child is autistic? An autistic child is a non-social, introverted child who exhibits repetitive behaviors, speech and non-verbal communication. That is not likely your child.
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Dyslexia, which emanates from a zinc deficiency, results in kids like mine who may be mislabeled as lazy or dumb or not trying hard enough yet still have a high IQ, but just may not test well. Eye exercises greatly helped my son improve his reading speed. A visit with a vision therapist (optometrist who specializes in children’s vision) is strongly suggested.
All the kids I’ve observed under tutorship in my son’s dyslexic reading class exhibit white moons at the base of their nail beds or ridges in their nails, a classic sign of zinc deficiency. Therapists aren’t paying attention. The blind are leading the blind.
Many dyslexic reading tutors were or are dyslexic themselves and are completely oblivious to the biological and nutritional origins of their condition and their students’ plight. Some dyslexia tutors fear losing their clients and never want to delve into the origins of their students’ reading problems.
Describing the dyslexic child
Ron Davis has done a good job of describing the dyslexic child. The dyslexic child has a strong sense of justice (in divorce, the child wants fairness for both parents even when one parent is abusive), has an unusual low tolerance for pain, is prone to ear infections, may have excellent long-term memory, may be talented in art, music, design, but not in team sports. As an aside, Beethoven and Mozart were believed to be dyslexic.
Some kids who have a shortage of zinc border on the Asperger’s side and have very high intellect but are socially inept. Zinc supplementation helps some dyslexic kids with Asperger’s. Asperger’s kids can recall almost everything. One wonders about Jesus who quoted 180 scriptures from 24 books in the Bible from memory. Was Jesus dyslexic? Pyroluric?
Why nutritional regimens fail
There are reasons why pyroluric kids may not respond to nutritional supplementation. Their typical western diet of sugary (high fructose corn syrup) breakfast cereals, incompletely fortified bread and other carbohydrates may even go to the point of spawning overgrowth of yeast overgrowth and produce a sugar-craving child.
A suggested dietary supplement regimen
The need for omega-6 GLA oils (gamma linolenic acid) over omega-3 fish and flaxseed oil should be emphasized among pyroluric children. Their dry eyes, dry cracked skin, dandruffy hair are signs of a GLA deficiency. Borage, evening primrose and black currant seed are good sources of supplemental omega-6 GLA oils.
Vitamin B6 as pyridoxyl 5 phosphate (P5P is the preferred form of B6).
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Zinc supplementation may be problematic since most kids (and adults) experience stomach upset when taking zinc pills. Zinc should be consumed with food to ensure there is enough stomach acid for absorption. Zinc carnosine is a slow-release zinc that is better tolerated. Zinc oxide is insoluble and should not be even be sold.
Zinc is much better absorbed when taken simultaneously with B6. And high doses of zinc are often bound up to a binding protein (metallothionein) but released and more bioavailable when selenium is co-supplemented.
Be wary of vaccines!
I have written a documentary report how zinc facilitates the development of B cells in bone marrow to T memory cells in the thymus gland. T memory cells are required to produce memory antibodies to any new incoming pathogens (bacteria, viruses, etc.). Kids with low zinc levels will not likely produce sufficient antibodies when vaccinated and will likely be more prone to serious side effects posed by vaccination. Vaccine induced disease would be more likely and in young children under two years of age who do not have a developed blood-brain barrier, some viruses may get into the brain to cause various problems like autism, convulsions, etc.
I do not recommend vaccination for dyslexic or pyroluric kids. My 81-page report authoritatively reveals zinc supplementation may supplant vaccines. To learn more visit www.beyondvaccines.com.
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