Prevalence of Lyme Disease in the US Is 10-Times Higher Than Previously Reported
September 04, 2013
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By Dr. Mercola
It’s now been fairly well-established that chronic inflammation is an
underlying factor in most chronic illnesses. Diseases, such as
Parkinson's, multiple sclerosis, cardiomyopathy, gastritis, and chronic
fatigue, are all turning out to be expressions of chronic infections.
Lyme disease appears to be a major, yet oftentimes hidden, player. This
may sound shocking to you, but diagnosing Lyme is very difficult, so the
actual number of cases is high relative to reporting.
According to preliminary statistics1, 2
just released by the Centers for Disease Control and Prevention (CDC),
approximately 300,000 new cases of Lyme disease are diagnosed in the US
each year. This is about 10 times higher than the officially reported
number of cases, indicating that the disease is being vastly
underreported.
The data was presented by CDC officials at the 2013 International
Conference on Lyme Borreliosis and Other Tick-Borne Diseases in Boston
in the middle of August. As reported in the featured article by Medical
News Today3:
“This agrees with studies reported in the 1990s that showed the
actual number of Lyme diseases cases in the US was likely to be three to
twelve times higher than reported... Lyme disease is the most commonly
reported tick-borne illness in the US.”
What Is Lyme disease?
Lyme disease was named after the East Coast town of Lyme, Connecticut, where the disease was first identified in 1975.4
The disease was first referred to as "Lyme arthritis" due to the
presentation of atypical arthritic symptoms in children that lived in
that city. By 1977, the black-legged tick (Ixodes scapularis, also known
as the deer tick) was linked to transmission of the infection.
Then in 1982, Willy Burgdorfer, PhD, discovered the bacterium responsible for the infection: the spirochete, named after him, Borrelia burgdorferi,5 is a cousin to the spirochete bacterium that causes syphilis.
In fact, the two look almost identical under a microscope. B. burgdorferi's
corkscrew-shaped form allows it to burrow into and hide in a variety of
your body's tissues, which is why it causes such wide-ranging
multisystem involvement.
Borrelia burgdorferi does not just exist as a spirochete; it
has the ability to live intracellularly (inside your cells) as an
“L-form” and also encoated as a “cyst” form. These different
morphologies explain why treatment is so difficult and recurrence of
symptoms occurs after standard antibiotic protocols.
Adding to the difficulty in treating Lyme, the organisms may live in
biofilm communities, which are basically a colony of germs surrounded by
a slimy glue-like substance that is hard to unravel. For these reasons
you will often see Lyme referred to as “stealth.”
No doubt about it, this clever maneuvering and the pleomorphism of the
germ helps it hide and survive despite the most aggressive antibiotics
of our time. Furthermore, as reported in the featured article:
“The Lyme disease bacterium has a quirky feature for survival. It
can exist without iron, which most other living organisms require to
make proteins and enzymes. Instead of iron, B. burgdorferi uses manganese, thus eluding immune system defenses that destroy pathogens by starving them of iron.”
You May Never See the Tick That Bites You
You can be host to the Lyme germ. The tick, which feeds off deer,
birds, animals (including your pet), then gets on you. It numbs your
skin so you won’t feel it. It prefers dark, crevices such as your armpit
or behind your ear, or your scalp. Depending on the season, the tick
may be a baby, termed a nymph.
It attaches to you (the host) and you may not see it since nymphs are no
bigger than a poppy seed. Once it attaches itself to you it feeds on
you (they are blood-suckers). At some point, and it may be an hour or a
couple of days, it will ‘spit’ its bacterial load into you. The bacteria
are released into your blood from the infected tick via saliva. We now
know there are five subspecies of Borrelia burgdorferi, more than 100 strains in the U.S. and 300 worldwide, many of which have developed resistance to our various antibiotics.
It’s worth noting that while many still attribute Lyme transmission exclusively to ticks, Dr. Deitrich Klinghardt,
one of the leading authorities on Lyme disease, warns that the bacteria
can also be spread by other insects, including mosquitoes, spiders,
fleas, and mites. This may be the reason so few Lyme sufferers recall
being bitten by a tick. The other reason of course, is that you don’t
feel the bite, and usually don’t see the tick!
In fact, fewer than half of Lyme patients recall ever getting a tick
bite. Many Lyme patients don't remember such an event because the tick
numbs your skin before biting so it is never felt. In some studies,this
number is as low as 15 percent. So, if you don't recall seeing a tick on
your body, that doesn't rule out the possibility of Lyme disease.
There’s even some evidence pointing to Lyme disease being capable of
sexual and congenital transmission...
To add confusion to the story of Lyme disease, ticks usually transmit
more than the Borrelia organism. They could simultaneously infect you
with Bartonella, Rickettsia, Ehrlichia and Babesia. Any or all of these
organisms can travel with Borrelia burgdorferi (the causative
agent of Lyme) and each causes a different set of symptoms. When a
person has Lyme, they often have some co-infections. Simply put, you can
have one tick bite, and wind up with five different infections. Each
patient with “Lyme disease” presents differently based upon their
co-infections, making a standard treatment plan impossible. Treatment is
based upon presentation of symptoms.
Lyme Disease: 'The Great Imitator'
Many Lyme patients who battle this disease on a daily basis appear
healthy, which is why Lyme disease has been called "the invisible
illness." They often "look good," and their routine blood work appears
normal, but their internal experience is a far different story. Several
people close to me, including my girlfriend Erin and a loved one of
Suzy Cohen, R. Ph, have struggled with Lyme disease for between 15 and
20 years. Both recently tested positive through the GeneX blood test
discussed below. This is actually a common scenario for many Lyme
patients.
The problem of misdiagnosis is typical for many Lyme patients because
conventional labs are not good at detecting the causative agent
(Borrelia burgdroferi) or it's co-infecting pathogens. Additionally,
physicians have been told for years that Lyme does not occur in some
states which is incorrect. Lyme is in every state, and in fact
worldwide.
With Lyme, the most disabling symptoms are always invisible. You never
feel completely well, there is always some issue to deal with, and as
soon as one symptom retreats, another appears. The dial is spinning all
the time. The constant and sometimes disabling symptoms leave you
physically depleted and spiritually weakened. Complicating matters
further, Lyme disease is also notoriously difficult to diagnose, and
laboratory tests are known to be unreliable. It’s difficult to test for
Lyme for a variety of reasons, but one of the main ones is that there
are so many species of the germ, and only a handful of strains are
detectable with current lab science technology.
It Can Happen to Anyone
Because Lyme and all of its co-infections cause so many constant
symptoms, it easily mimics disorders, such as multiple sclerosis (MS),
arthritis, Parkinson’s, chronic fatigue syndrome, fibromyalgia, ALS,
ADHD and Alzheimer's disease. The only distinctive hallmark unique to Lyme disease is the "bull’s-eye" rash known as Erythema Migrans,6
a red rash with an expanding red ring around it and this occurs soon
after the tick bite. After it clears up, this bull’s-eye rash is gone.
And for the record, it’s not even always in the shape of a bull’s eye.
Perhaps now you understand why the cases reported to the CDC have been
woefully low. But as just mentioned, less than half of all cases of Lyme
can be traced to a tick bite, so this hallmark rash is absent in many
of those infected.
So how do you know if you have Lyme disease? Besides the rash, some of
the first symptoms of Lyme disease may include a flu-like condition with
fever, chills, headache, stiff neck, achiness and fatigue. Treatment at
this point is crucial because it may help you avoid chronic Lyme. If
you don’t see the tick and remove it, it can progress to ailments like
arthritis, facial palsy, nervous system and heart problems and a hundred
other symptoms. For a more extensive list of symptoms, refer to the
Tick-Borne Disease Alliance7 (TBDA), but some of the more frequent symptoms include the following:
- Muscle and joint pain
- Neurological problems
- Heart involvement
- Vision and hearing problems
- Migraines
To give you an example, recently the College of Charleston President
George Benson was hospitalized for Lyme disease according to an email he
addressed to campus members. Prior to this, he had been hospitalized
for severe back pain, but no one was sure of the exact cause. His
possible successor, Republican Lt. Gov. Glenn McConnell was also ill
from Lyme disease last year according to The Associated Press. Lyme is
everywhere, I suspect that even the most recent numbers reported by the
CDC (300,000 cases) is lower than the actual real-life cases. For more
real-life examples, see the discussion below, featuring two Lyme
patients, and this recent CNN Health article8 by Erik Nivison, producer for HLN's "In Session,” who was recently diagnosed with Lyme disease after 2 years of symptoms.
This video may not be viewable on mobile devices.
Controversy Surrounding Lyme Disease
There’s a load of controversy around Lyme disease. In the past,
sufferers were told their ailments were “all in their head,” and the
disease was largely swept under the rug. Sadly, this still occurs today
and this is frequently missed. The controversy for the most part today
largely revolves around whether or not antibiotics are effective against
chronic Lyme disease, and whether there even is such a thing as chronic
Lyme.
According to Suzy Cohen, doctors that belong to the Infectious Disease
Society of America (IDSA) do not believe in chronic Lyme and typically
will not treat a Lyme patient beyond four weeks. Some medical doctors
and practitioners belong to the International Lyme and Associated
Diseases Society9
(ILADS) group, which does believe that Lyme can and often persists
beyond a few weeks, and are willing to treat you beyond the four-week
period.
I can tell you, chronic Lyme does exist, and no matter how long you’ve
had it, there is always hope for a full recovery. It baffles me as to
how physicians can deny infection when these organisms are stealth and
evade detection and standard treatment protocols. As described by
investigative journalist Beth Daley in the PBS interview10 above:
“It's a very controversial disease, in large part because there are
so many questions about treatment and lingering symptoms of people with
Lyme and if people actually have Lyme disease who are sick... [T]raditionally,
you get bit by a tick, you might see a rash or feel a fever or you go
to the doctor. They sort of diagnose you through tests or clinically.
And you would probably get three to four weeks of oral antibiotics. And
that is -- most people agree, is usually enough to knock the disease
from your system completely. Sometimes, it goes a little bit longer if
it's more involved, but short courses of antibiotics overall.
However, a large segment of people believe that their symptoms
linger for years sometimes, and the only way to treat them is to use
long-course antibiotics, often through intravenously or orally, for
years on end to -- so they can live, so they can really get out of bed
in the morning. And that is a controversy. The medical establishment
says, listen, there's no proof this longer course of antibiotics work at
all. And these Lyme patients say, yes, it does... And a lot of the
debate centers on, a lot of insurance companies won't pay for those
antibiotics. As a result, lots of people go bankrupt...”
According to Daley, there’s little discussion within the medical
community to determine whether patients with lingering symptoms actually
benefit from long-course antibiotics or not. However, some researchers
are looking into the matter. Researchers at Yale, for example, are
investigating whether the killed-off bacteria might be leaving protein
residues behind, causing long-term symptoms. Other research being
performed at Tufts suggests that the bacteria can indeed survive, at
least in animal studies, and that this weakened bacteria might still
contribute to problems. Daley also points out that these latest
statistics really bring Lyme disease to the fore politically:
“If you just consider Massachusetts, which is -- where The Boston
Globe is, we spend $10 million a year and more on mosquito control. We
spend $60,000 on tick-borne diseases. The disparity is great. And as
Lyme disease burden grows on public health, hopefully -- I think people
are hoping that the political forces will come to bear, that they will
start seeing money to eradicate ticks in the environment or help people
learn more about them.”
I personally believe that long term antibiotic treatment is not a wise
choice for most, and that every natural alternative should be considered
prior to that strategy as there is a major danger for impairing your
beneficial bacteria and developing a yeast or fungal co-infections,
which are already common in the disease.
The use of antifungals like fluconazole and nystatin may certainly be
appropriate and helpful when a secondary yeast infection is present, and
it often is present in cases of Lyme disease. In an ideal world, you
would boost your immune function with a healthy diet, antioxidants such
as astaxanthin and even a compounded drug called low-dose naltrexone
(LDN), known to help your body fight harder. A gentler solution to
conventional antibiotics that can strip your body of needed probiotics
and cause a myriad of symptoms is the Nutramedix line of herbal
antimicrobials. This was developed by my friend Dr. Lee Cowden and is
often termed the “Cowden Protocol.” It is not thought to cause
resistance because this protocol cycles various herbal antimicrobials.
Is There Such a Thing as Chronic Lyme Disease?
Slate Magazine11
ran an article earlier this summer highlighting the controversy
surrounding chronic Lyme disease, also referred to as “post-treatment
Lyme disease syndrome” (PTLDS). According to some studies,12 PTLDS affects 0.5 to 13 percent of patients treated for Lyme:
“Doctors divide chronic Lyme disease into two categories, broadly
speaking. The first involves patients who have a known history of
infection by Borrelia burgdorferi, the spirochete responsible
for Lyme disease. A small subgroup of patients treated for the disease
experiences aches, fatigue, and other nonspecific symptoms more than a
year after the infection clears. Whether these symptoms have anything to
do with the initial infection or treatment is a subject of controversy
among mainstream doctors, because we don’t have enough data to make a
judgment.
Then there are patients with no proven history of actual infection,
who represent the overwhelming majority of people claiming to suffer
from chronic Lyme. This form of chronic Lyme is controversial in the
same sense that rhinoceros horn therapy is controversial: There’s no
reliable data to support it.”
While some patients do report success on long-term antibiotic
treatments, there are clearly risks associated with such a strategy. For
one, you raise your risk of developing antibiotic-resistant disease,
and antibiotics kill off both good and bad bacteria, making it virtually
impossible to maintain optimal gut health without rigorous reseeding of
probiotics. By disrupting your gut flora, you then expose yourself to a
whole host of other pathologies. This is an important point, and a
major part of the overall controversy. So should you be treated with
long-term antibiotics if you do not have a history of active Lyme
infection? I believe the side effects of taking antibiotics long-term
are detrimental enough to consider your alternatives. And remember, Lyme
organisms can exist in three different forms (cyst, spirochete and
L-form) so they are really very good at hiding from antibiotics anyway.
If you are one of those people that are sensitive to alcohol,
medications, antibiotics or perfume, this is a sign that you likely have
a methylation defect in your genetics. The methylation pathway is a
detoxification pathway in your body that clears toxins. Lyme disease
sufferers often have a methylation problem, especially those people with
neurological symptoms that are unresponsive to conventional treatments.
Suzy Cohen wrote a detailed article about methylation and explains how
to naturally circumvent this problem if you have Lyme disease, and ease
your symptoms. For that article click here.13
Tests and Treatment Protocols for Lyme Disease
One of the reasons blood tests are so unreliable as indicators of Lyme
infection is that the spirochete has found a way to infect your white
blood cells. Lab tests rely on the normal function of these cells to
produce the antibodies they measure. If your white cells are infected,
they don't respond to an infection appropriately. And the worse your
Borrelia infection is, the less likely it will show up on a blood test.
So, in order for Lyme tests to be useful, you have to be treated first.
Once your immune system begins to respond normally, only then will the
antibodies show up...
If your blood test comes back with positive IgM antibodies, take this as
a positive confirmation of active Lyme in your body. I tell you this
because many physicians will dismiss a positive IgM antibody and tell
you that you do not have an active infection. They will tell you it is a
false positive and not to worry, and not to treat. Nothing could be
further from the truth. Because of a process called antigenic variation,
the proteins on the outer surface of the Lyme germ move around, causing
your body to see the germ as new and different, even if it's been
living inside your body for decades. This is what causes the positive
IgM years after the initial infection. It's also called "epitope
switching." So I want you to know that if you have a blood test that
shows positive IgM antibodies, I would consider this a positive test,
and you are best served by getting treatment, especially if you have
symptoms of Lyme.
Another reason is because a vaccine was developed years ago, and
conventional testing does not identify the most popular surface proteins
or “bands” as they are sometimes called because those were in the
original vaccine (Lymerix) now removed from the market. So if you can’t
test for the most common bands of Lyme, how will you find the infection
in people? This is yet another reason Lyme is so underreported. If you
take a standard “Western Blot” blood test for it, your test is likely to
be negative even if you have full-blown Lyme disease.
For this reason, I recommend the specialized lab called Igenex because
they test for more outer surface proteins (bands), and can often detect
Lyme while standard blood tests cannot. Igenex also tests for a few
strains of co-infections such as Babesia and Erhlichia. That said, a
negative on the Igenex test for these co-infections doesn’t necessarily
mean you are not infected, there are many more strains than they can
test for.
Below are the five steps Dr. Klinghardt recommends to consider when treating Lyme Disease:
- Evaluation of all external factors. External factors include
electrosmog, EMF, microwave radiation from wireless technologies, and
molds. For more information on mold, see Ritchie Shoemaker's website.
- Remediation and mitigation of external factors. Once external
factors have been assessed, they're remediated and mitigated. (Please
refer to our previous article on mold remediation.)
To mitigate microwave radiation, Dr. Klinghardt recommends shielding
the outside of your home with a graphite paint called Y Shield. Inside,
he uses a special silver-coated cloth for your curtains. Patients are
instructed to remove all cordless telephones and turn off all the fuses
at night, until they have recovered from Lyme disease.
- Addressing emotional issues. Emotional components of the disease
are addressed using Energy Psychology tools, including
psychokinesiology (PK), which is similar to the Emotional Freedom Technique (EFT), but more refined and advanced.
- Addressing parasitic, bacterial and viral infections. Dr.
Klinghardt addresses the parasites first, followed by the bacteria and
the viruses. The "Klinghardt antimicrobial cocktail," which includes
wormwood (artemisinin), phospholipids, vitamin C, and various herbs, is
an integral part of this treatment. He addresses viral infections with
Viressence (by BioPure), which is a tincture of Native American herbs.
- Addressing other lifestyle factors. Nutritional considerations and supplements are addressed.
Also, the following table lists a variety of different treatment
strategies that have been found to be useful in Lyme disease by those
embracing natural methods.
| Probiotics to improve immunity and restore microflora during and after antibiotics |
Curcumin is helpful at reducing neurological toxins and brain swelling |
| Astaxanthin to neutralize toxins, improve vision & relieve joint pain, common in Lyme |
Whey protein concentrate may help with nutrition, often poor in Lyme patients who don’t feel well enough to eat properly |
| Grapefruit seed extract may treat the cyst form of Borrelia |
Krill oil to reduce inflammation |
| Cilantro as a natural chelator for heavy metals |
Serrapeptase helps to break biofilms |
| Resveratrol may treat Bartonella, a co-infection and also helps detoxification |
GABA and melatonin to help with insomnia |
| Artemisinin and Andrographis, two herbs that may treat Babesia, a common co-infection |
CoQ10 to support cardiac health and reduce muscle pain and brain fog |
| Quercetin reduces histamine (often high in Lyme) |
Transfer factors can help boost immune function |
Tips for Preventing Lyme Disease
Clearly, preventing infection is your best strategy. To avoid tick and other insect bites,
make sure to tuck your pants into socks and wear closed shoes and a
hat—especially if venturing out into wooded areas. The CDC also
recommends cutting down your risk of Lyme and other tickborne diseases
by following these steps14:
| Check for ticks daily, on yourself, your child and pets |
Bathe
or shower soon after being outdoors (preferably within two hours) to
wash off and more easily find any lingering ticks or tick bites |
If you’ve been in a tick-infested area, do a careful full body check. Use a mirror to view all parts of your body |
| Check
for ticks in your child’s hair, under the arms, in and around the ears,
the belly button, between the legs, around the waist, and behind the
knees |
Inspect clothing for ticks. Tumble clothes on high heat for an hour to kill ticks you may have missed |
See a doctor if you develop a telltale “bull’s-eye” rash |
Additional Resources
In Dr. Klinghardt's experience, the International Lyme and Associated Disease Society15 (ILADS) is by far the best and most responsible group. The following are some other resources you might find helpful:
- "Under Our Skin" website16
- Tick-Borne Disease Alliance17 (TBDA)
- Lymedisease.org18 (formerly CALDA)
Another leading Lyme disease expert Richard Horowitz, MD and author of the new book, Why Can’t I Get Better? Solving the Mystery of Lyme and Chronic Disease, has stated:
“This condition is better termed Lyme MSIDS, short for Multiple
Systemic Infectious Disease Syndrome. MSIDS is like Pandora’s Box
because it includes many infections, co-infections and secondary
infections. Treatment should be tailored to each patient individually.”
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